The CLLAN Community Forum is a closed forum available by invitation to members of the CLL Advocates Network and participants of the 2019 CLL Horizons Conference. The CLL Advocates Network Forum is run by the volunteer steering committee. It is meant to be a place where other CLL advocates can communicate and share with each other. It is a private forum, open exclusively to the above mentioned target groups. Information on this site is meant for educational purposes only and is not meant to replace or give medical advice. We reserve the right to delete any post without explanation. No liability, explicit or implied, shall be extended to the owners or maintainers of this forum for messages posted to the forum.
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Your CLL Advocates Network Team
Home›Forums›UK COVID CLL information initiatives, Please share examples in your country
We know that a lot of the information about COVID-19 for the general public does not answer the concerns of people with CLL. The UKCLL Forum has produced this information leaflet to provide extra advice for UK CLL patients.
UK OVID CLL patient survey – CLL Support and Leukaemia Care sit on the executive committee of the UK CLL Forum, the specialist umbrella organisation for CLL in the UK. Its aims are to bring together everyone with an interest in CLL and to bridge the gap between the clinical and scientific aspects of the disease. The Forum specialists are very keen for UK data on the impact of the virus on our community and have asked for our help. In conjunction with Leukaemia Care we have developed a survey to gather this data on their behalf.
Leukaemia Care UK Self-isolation/shielding for people with blood cancers – FAQs. The UK government have now issued full advice for all people considered at extra high risk of severe disease if they contract coronaviruses. Leukaemia Care have broken this information down for patients in this blog
Leukaemia Care UK webinar to aid CLL patients navigate care and avoid infection during the COVID pandemic
VIDEO RECORDED LIVE on 8/4/2020. INFORMATION CORRECT AS OF THIS DATE.
In the video we are joined by Professor Chris Fegan and CLL patient Nick York as they discuss and answer questions about how COVID-19 is affecting chronic lymphocytic leukaemia (CLL) patients.